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Ayuda para Pacientes y Cuidadores

Problemas de Salud - Abajo están algunos de los problemas de salud más comunes. Por favor siéntase libre leer la información que hemos reunido. Alguna de esta información incluye los riesgos, consejos, explicaciones, y consejos de prevención para pacientes y cuidadores.
Enfermedad de Alzheimer Diabetes
Cuidado para Heridas Ataques/Epilepsia
Cáncer del seno Hepatitis C
CHF Obesidad
Fibrosis Enquistada Osteoporosis
Apnea del Sueño Distrofia Muscular
COPD Incontinencia Urinaria
Enfermedad de Parkinson's Esclerosis Múltiple

Help for Patients and Caregivers : Asthma

Asthma Is a Serious Lung Disease
What Causes Asthma?
Your Asthma Can Be Controlled With Proper Care
How To Take Care of Your Asthma
How To Work With Your Doctor
Is Your Ashma Under Control?
Taking the Right Medicines at the Right Times
Asthma Medicines: Brand and Generic Names
How to Use Your Metered-Dose Inhaler the Right Way
Asthma Action Plan - Printable form
How to Use Your Peak Flow Meter
How to Control Things That Make Your Asthma Worse
For More Information


If you have asthma, you are not alone. More than 14 million people in the United States have this lung disease. Of these, almost 5 million are children. Asthma is a problem among all races. But the asthma death rate and hospitalization rate for blacks are three times the rate of whites. Proper asthma care could prevent these problems for all. Normal Airway vs Asthma AirwayThis website can help you learn how to control your asthma or help a friend or family member with asthma. Asthma

Asthma Is a Serious Lung Disease
Asthma makes the sides of the airways in your lungs inflamed or swollen all the time. See the drawing below. Your airways react to things like smoke, dust, pollen, or other things. Your airways narrow or become smaller and you get common symptoms like those listed in the box. Asthma that is not well controlled can cause many problems. People miss work or school, go to the hospital, or even die because of their asthma. But you do not have to put up with the problems asthma can cause.

Common Symtoms of Asthma include Coughing, Wheezing, Chest Tightness, and Shortness of Breath

What Causes Asthma?

The cause of asthma is still unknown. From studying asthma patients, researchers have concluded that the following factors can lead to asthma:

Genetic Factors: Asthma has the tendency to run in families. It has not yet been determined what genetic factors actually play a part in determining if a person will be diagnosed with asthma. Individuals who have allergies are more likely to have asthma as well.

Air Quality: General environmental factors such as house dust mites in bedding, carpet ad furnishings, exposure to tobacco smoke during pregnancy or as a small child, and children who are exposed to animals, pollens, molds and dust are more likely to have asthma. The occupational environment also has a large influence on our likelihood of having asthma. Pollens, molds, dust, gases and chemicals can cause our airways to become weak. The following are some examples of hazardous occupations likely to cause asthma: manufacturing, woodworking, farming and working with chemicals.

Dietary Changes: An increase in processed food, increase in salt intake, decrease in antioxidant intake and the lack of fresh oily fish may all increase the chances of cause asthma.

Lack of exercise: In the 21st century there has been an increase in the amount of television that is watched and a decrease in the amount of physical activity. This decrease in physical activity can cause a decrease in the strength of the airway passage causing the airway muscles to abnormally contract when irritated by environmental changes.

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Your Asthma Can Be Controlled With Proper Care
With your doctor’s help, you can control your asthma and become free of symptoms most of the time. But your asthma does NOT go away when your symptoms go away. You need to keep taking care of your asthma.

Your asthma cannot be cured—having asthma is a part of your life. So you need to make taking care of your asthma a part of your life. This is true even if your asthma is mild.

 

 

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How To Take Care of Your Asthma

  1. Work with your doctor and see him or her at least every 6 months.
    See: “How To Work With Your Doctor”
  2. Take your asthma medicines exactly as your doctor tells you.
    See: “Taking the Right Medicines at the Right Times”
    “How To Use Your Metered-Dose Inhaler the Right Way”
    “Asthma Action Plan”
  3. Watch for signs that your asthma is getting worse and act quickly.
    See: “Asthma Action Plan” (The action plan gives you some signs that your asthma is getting worse and says when to take medicines.)
    “How To Use Your Peak Flow Meter”
  4. Stay away from or control things that make your asthma worse.
    See: “How To Control Things That Make Your Asthma Worse”

How To Work With Your Doctor

  • Agree on clear treatment goals with your doctor. Your goal is to be able to say “no” to all the questions in the box on section titled, “Is Your Asthma Under Control?
  • Agree on what things you need to do. Then do them.
    - Ask questions until you feel you know what your doctor wants you to do, when you should do it, and why. Tell your doctor if you think you will have trouble doing what is asked. You can work together to find a treatment plan that is right for you.
    - Write down the things you are supposed to do before you leave the doctor’s office, or soon after.
    - Put up reminders to yourself to take your medicine on time. Put these notes in places where you will see them.
  • See your doctor at least every 6 months to check your asthma and review your treatment. Call for an appointment if you need one.

Prepare a day or two before each doctor’s visit:

  • Answer the questions in “Is Your Asthma Under Control?”. Talk to your doctor about your answers. Also, talk about any changes in your home or work that may have made your asthma worse.
  • Write down questions and concerns to discuss with your doctor. Include ALL of your concerns, even those you think are not a big deal.
  • Bring your medicines and written action plan to each visit. If you use a peak flow meter, bring it to each visit.

“The doctor would ask me at each visit how little Jimmy’s asthma was. I always forgot to mention some symptoms or other problems. Now it’s different. Before we visit the doctor, I write down when Jimmy had symptoms in the past 2 weeks. I also write down all the questions I have. Now when I leave the doctor’s office, I feel happy that I got all my issues addressed.”

- Deborah, mother of a child with asthma


Is Your Ashma Under Control?
Answer these questions by checking "yes" or "no." Do this just before each doctor's visit.

In the past 2 weeks

1. Have you coughed, wheezed, felt short of breath, or had chest tightness:
      - During the day? _______ Yes _______ No
      - At night, causing you to wake up? _______ Yes _______ No
      - During or soon after exercise? _______ Yes _______ No
2. Have you needed more "quick-relief" medicine than usual? _______ Yes _______ No
3. Has your asthma kept you from doing anything you wanted to do? _______ Yes _______ No
      If yes, what was it?    
      ____________________________________________________________
      ____________________________________________________________
4. Have you asthma medicines caused you any problems, like shakiness, sore throat, or upset stomach? _______ Yes _______ No
In the past few months:    
5. Have you missed school or work because of you asthma? _______ Yes _______ No
6. Have you gone to the emergency room or hospital because of your asthma? _______ Yes _______ No

What Your Answers mean    
- All "no" asnwers? - Your asthma is under control.
- One or more "yes" answers? - Something needs to be done. Read the guide on how to get your asthma under control and talk to your doctor.
   

Taking the Right Medicines at the Right Times
There are two main kinds of medicines for asthma:
(1) those that help with the long-term control of asthma and
(2) those that give short-term quick relief from asthma symptoms. See the list of brand and generic names for asthma medicines.

Long-Term-Control Medicines Are Taken Every Day To Control Asthma
Long-term-control medicines will prevent symptoms and control asthma. But it often takes a few weeks before you feel the full effects of this medicine.

Ask your doctor about taking daily long-term-control medicine if you:

  • Have asthma symptoms three or more times a week, or
  • Have asthma symptoms at night three or more times a month.

If you need a long-term-control medicine, you will need to keep taking your medicine each day, even when you feel well. This is the only way you can keep your asthma under control. Make taking your long-termcontrol medicine a part of your daily routine—just like eating, sleeping, and brushing your teeth.

The Long-Term-Control Medicines
The most effective long-term-control medicines are those that reduce swelling in your airways (inflammation). These medicines include inhaled steroids, cromolyn, and nedocromil.

  • Inhaled steroids and steroid tablets or liquids are the strongest long-term-control medicines. The steroids used for asthma are NOT the same as the unsafe steroids some athletes take to build muscles.
    • Inhaled steroids are used to prevent symptoms and control mild, moderate, and severe asthma. Inhaled steroids are safe when taken at recommended doses. This is because the medicine goes right to your lungs where you need it. This reduces the amount of medicine you need and the chance of any side effects.
    • Steroid tablets or liquids are used safely for short times to quickly bring asthma under control. They are also used longer term to control the most severe asthma.
  • Cromolyn and nedocromil are often the choice of medicine for children with mild asthma.
  • Inhaled long-acting beta2- agonists are used to help control moderate-to-severe asthma and to prevent nighttime symptoms. Long-acting beta2-agonists do not reduce inflammation. Therefore, patients taking this medicine also need to take inhaled steroids. Inhaled longacting beta2-agonists should not be used for quick relief of asthma attacks.
  • Sustained-release theophylline or sustained-release beta2- agonist tablets can help prevent nighttime symptoms. These medicines are used with inhaled steroids, nedocromil, or cromolyn. Theophylline is sometimes used by itself to treat mild asthma. The dose for theophylline must be checked over time to prevent side effects.
  • Zileuton and zafirlukast are a more recent type of long-termcontrol medicine. Studies so far show that it is used mainly for mild asthma in patients 12 years of age and older.

Quick-Relief Medicines Are Taken Only When Needed
Inhaled quick-relief medicine quickly relaxes and opens your airways and relieves asthma symptoms. But it only helps for about 4 hours. Quick-relief medicine cannot keep symptoms from coming back—only long-termcontrol medicines can do that.

Take quick-relief medicine when you first begin to feel symptoms— like coughing, wheezing, chest tightness, or shortness of breath. Your doctor may tell you to use a peak flow meter to help you know when to take your inhaled quickrelief medicines. Do not delay taking your quickrelief medicine when you have symptoms. This can keep you from having a really bad asthma attack. Tell your doctor if you notice you are using more of this medicine than usual. This is often a sign that your long-term-control medicine needs to be changed or increased.

Make an Action Plan With Your Doctor
Ask your doctor to help you fill out the “Asthma Action Plan”. Be sure you know when to take your medicine and what to do when your asthma gets worse.

“I always thought if you had asthma you should expect to have asthma symptoms. My new doctor disagreed. She told me to take an “inhaled steroid” every day for my asthma. Well, I did not feel anything at first. But after about 3 weeks, my symptoms came less often. Now, after a few months on this medicine, I can see my doctor was right. Asthma can really be controlled.”

Glen, a long-time asthma patient

Asthma Medicines: Brand and Generic Names, 1997*
Asthma Long-Term Control Medications
Generic Name Brand Name

Steroids: Inhaled
belomethasone Beclovent®
Vanceril®, Vanceril®—Double
Strength
budesonide Pulmicort Turbuhalor®
flunisolide AeroBid®, AeroBid-M®
fluticasone Flovent®
triamcinolone Azmacort®

Cromolyn and Nedocromil: Inhaled
cromolyn sodium Intal®
nedocromil sodium Tilade®

Leukotriene Modifiers: Tablets
zafirlukast Accolate®
zileuton Zyflo®

Long-Acting Beta2-Agonists
salmeterol (inhaled) Serevent®
albuterol Volmax®
(extended release tablets) Proventil Repetabs ®

Theophylline: Tablets or liquid
Aerolate® III
Aerolate® JR
Aerolate® SR
Choledyl® SA
Elixophyllin®
Quibron®-T
Quibron®-T/SR
Slo-bid®
Slo-Phyllin®
Theo-24®
Theochron®
Theo-Dur®
Theolair®
Theolair®-SR
T-Phyl®
Uni-Dur®
Uniphyl®
Asthma Quick-Relief Medications
Generic Name Brand Name

Short-Acting Beta2-Agonists: Inhaled
albuterol Airet®
Proventil®
Proventil HFA®
Ventolin®
Ventolin® Rotacaps
bitolterol Tornalate®
pirbuterol Maxair®
terbutaline Brethaire®
Brethine® (tablet only)
Bricanyl® (tablet only)

Anticholinergics: Inhaled
ipratropium bromide Atrovent®

Steroids: Tablets or liquids
methylprednisolone Medrol®
prednisone Prednisone
Deltasone®
Orasone®
Liquid Pred®
Prednisone Intensol®
prednisolone Prelone®
Pediapred®
 
* This glossary is a complete list of brand names associated with the appropriate generic names of asthma medications, as listed in the United States Pharmacopeial Convention, Inc., Approved Drug Products and Legal Requirements, Volume III, 17th edition, 1997, and the USP DI Drug Information for Health Care Professionals, Volume I, 17th edition, 1997. This list does not constitute an endorsement of these products by the National Heart, Lung, and Blood Institute.

How to Use Your Metered-Dose Inhaler the Right Way
     Using an inhaler seems simple, but most patients do not use it the right way. When you use your inhaler the wrong way, less medicine gets to your lungs. (Your doctor may give you other types of inhalers.)
     For the next 2 weeks, read these steps aloud as you do them or ask someone to read them to you. Ask your doctor or nurse to check how well you are using your inhaler.
     Use your inhaler in one of the three ways pictured below (A or B are best, but C can be used if you have trouble with A and B).
Steps for Using Your Inhaler  
Getting Ready  
1. Take off the cap and shake the inhaler.
2. Breathe out all the way.
3. Hold your inhaler the way your doctor said (A, B, or C below).
Breathe in slowly    
4. As you start breathing in slowly through your mouth, press down on the inhaler one time. (If you use a holding chamber, first press down on the inhaler. Within 5 seconds, begin to breathe in slowly.)
5. Keep breathing in slowly, as deeply as you can.
Hold your breath     6. Hold your breath as you count to 10 slowly, if you can.
7. For inhaled quick-relief medicine (beta2-agonists), wait about 1 minute between puffs. There is no need to wait between puffs for other medicines.
A. Hold inhaler 1 to 2 inches in front of your mouth (about the width of two fingers). B. Use a spacer/holding chamber. These come in
many shapes and can be useful to any patient.
C. Put the inhaler in your mouth. Do not use for steroids.
A. Hold inhaler 1 to 2inches in front of your mouth (about the width of two fingers).
B. Use a spacer/holding chamber. These come in many shapes and can be useful to any patient.
C. Put the inhaler in your mouth. Do not use for steroids
Clean Your Inhaler as Needed
Look at the hole where the medicine sprays out from your inhaler. If you see “powder” in or around the hole, clean the inhaler. Remove the metal canister from the L-shaped plastic mouthpiece. Rinse only the mouthpiece and cap in warm water. Let them dry overnight. In the morning, put the canister back inside. Put the cap on.
Know When To Replace Your Inhaler
For medicines you take each day (an example): Say your new canister has 200 puffs (number of puffs is listed on canister) and you are told to take 8 puffs per day.


So this canister will last 25 days. If you started using this inhaler on May 1, replace it on or before May 25.

You can write the date on your canister. For quick-relief medicine take as needed and count each puff.

Do not put your canister in water to see if it is empty. This does not work.



How to Use Your Peak Flow Meter
A peak flow meter helps you check how well your asthma is controlled. Peak flow meters
are most helpful for people with moderate or severe asthma.
This guide will tell you (1) how to find your personal best peak flow number, (2) how to use your personal best number to set your peak flow zones, (3) how to take your peak flow, and (4) when to take your peak flow to check your asthma each day.
Starting Out: Find Your Personal Best Peak Flow Number

To find your personal best peak flow number, take your peak flow each day for 2 to 3 weeks. Your asthma should be under good control during this time. Take your peak flow as close to the times listed below as you can. These times for taking your peak flow are only for finding your personal best peak flow.

  • Between noon and 2:00 p.m. each day
  • Each time you take your quickrelief medicine to relieve symptoms (measure your peak flow after you take your medicine)
  • Any other time your doctor suggests

Write down the number you get for each peak flow reading. The highest peak flow number you had during the 2 to 3 weeks is your personal best.

Your personal best can change over time. Ask your doctor when to check for a new personal best.

To check your asthma each day, you will take your peak flow in the morning. This is discussed in the coming text.

Your Peak Flow Zones Your peak flow zones are based on your personal best peak flow number. The zones will help you check your asthma and take the right actions to keep it controlled. The colors used with each zone come from the traffic light.
Green Zone (80 to 100 percent of your personal best) signals good control. Take your usual daily long-term-control medicines, if you take any. Keep taking these medicines even when you are in the yellow or red zones.
Green Zone (80 to 100 percent of your personal best) signals good control. Take your usual daily long-term-control medicines, if you take any. Keep taking these medicines even when you are in the yellow or red zones.
Yellow Zone (50 to 79 percent of your personal best) signals caution: your asthma is getting worse. Add quick-relief medicines. You might need to increase other asthma medicines as directed by your doctor.
Yellow Zone (50 to 79 percent of your personal best) signals caution: your asthma is getting worse. Add quick-relief medicines. You might need to increase other asthma medicines as directed by your doctor.
Red Zone (below 50 percent of your personal best) signals medical alert! Add or increase quick-relief medicines and call your doctor now.
Red Zone (below 50 percent of your personal best) signals medical alert! Add or increase quick-relief medicines and call your doctor now.

Ask your doctor to write an action plan for you that tells you:

  • The peak flow numbers for your green, yellow, and red zones. Mark the zones on your peak flow meter with colored tape or a marker.
  • The medicines you should take while in each peak flow zone.

How To Take Your Peak Flow

  1. Move the marker to the bottom of the numbered scale.
  2. Stand up or sit up straight.
  3. Take a deep breath. Fill your lungs all the way.
  4. Hold your breath while you place the mouthpiece in your mouth, between your teeth. Close your lips around it. Do not put your tongue inside the hole.
  5. Blow out as hard and fast as you can. Your peak flow meter will measure how fast you can blow out air.
  6. Write down the number you get. But if you cough or make a mistake, do not write down the number. Do it over again.
  7. Repeat steps 1 through 6 two more times. Write down the highest of the three numbers. This is your peak flow number.
  8. Check to see which peak flow zone your peak flow number is in. Do the actions your doctor told you to do while in that zone.

Your doctor may ask you to write down your peak flow numbers each day. You can do this on a calendar or other paper. This will help you and your doctor see how your asthma is doing over time.

Checking Your Asthma: When To Use Your Peak Flow Meter

  • Every morning when you wake up, before you take medicine. Make this part of your daily routine.
  • When you are having asthma symptoms or an attack. And after taking medicine for the attack. This can tell you how bad your asthma attack is and whether your medicine is working.
  • Any other time your doctor suggests. If you use more than one peak flow meter (such as at home and at school), be sure that both meters are the same brand.

Bring to Each of Your Doctor’s Visits:

  • Your peak flow meter.
  • Your peak flow numbers if you have written them down each day.

Also, ask your doctor or nurse to check how you use your peak flow meter—just to be sure you are doing it right.


How to Control Things That Make Your Asthma Worse
You can help prevent asthma attacks by staying away from things that make your asthma worse. This guide suggests many ways to help you do this.

You need to find out what makes your asthma worse. Some things that make asthma worse for some people are not a problem for others. You do not need to do all of the things listed in this guide.

Look at the things listed in dark print below. Put a check next to the ones that you know make your asthma worse. Ask your doctor to help you find out what else makes your asthma worse. Then, decide with your doctor what steps you will take. Start with the things in your bedroom that bother your asthma. Try something simple first.

Tobacco Smoke

  • If you smoke, ask your doctor for ways to help you quit. Ask family members to quit smoking, too.
  • Do not allow smoking in your home or around you.
  • Be sure no one smokes at a child’s day care center.

Smoke, Strong Odors, and Sprays

  • If possible, do not use a wood-burning stove, kerosene heater, or fireplace.
  • Try to stay away from strong odors and sprays, such as perfume, talcum powder, hair spray, and paints.

Indoor Mold

  • Fix leaky faucets, pipes, or other sources of water.
  • Clean moldy surfaces with a cleaner that has bleach in it.

Dust Mites
Many people with asthma are allergic to dust mites. Dust mites are like tiny “bugs” you cannot see that live in cloth or carpet.

Things that will help the most:

  • Encase your mattress in a special dust-proof cover.*
  • Encase your pillow in a special dust-proof cover* or wash the pillow each week in hot water. Water must be hotter than 1300F to kill the mites.
  • Wash the sheets and blankets on your bed each week in hot water.

Other things that can help:

  • Reduce indoor humidity to less than 50 percent. Dehumidifiers or central air conditioners can do this.
  • Try not to sleep or lie on cloth-covered cushions or furniture.
  • Remove carpets from your bedroom and those laid on concrete, if you can.
  • Keep stuffed toys out of the bed or wash the toys weekly in hot water.

Animal Dander
Some people are allergic to the flakes of skin or dried saliva from animals with fur or feathers.

The best thing to do:

  • Keep furred or feathered pets out of your home.

If you can’t keep the pet outdoors, then:

  • Keep the pet out of your bedroom and keep the bedroom door closed.
  • Cover the air vents in your bedroom with heavy material to filter the air.*
  • Remove carpets and furniture covered with cloth from your home. If that is not possible, keep the pet out of the rooms where these are.

Cockroach
Many people with asthma are allergic to the dried droppings and remains of cockroaches.

  • Keep all food out of your bedroom.
  • Keep food and garbage in closed containers (never leave food out).
  • Use poison baits, powders, gels, or paste (for example, boric acid). You can also use traps.
  • If a spray is used to kill roaches, stay out of the room until the odor goes away.

Vacuum Cleaning

  • Try to get someone else to vacuum for you once or twice a week, if you can. Stay out of rooms while they are being vacuumed and for a short while afterward.
  • If you vacuum, use a dust mask (from a hardware store), a double-layered or microfilter vacuum cleaner bag,* or a vacuum cleaner with a HEPA filter.*

Pollen and Outdoor Mold
What to do during your allergy season (when pollen or mold spore counts are high):

  • Try to keep your windows closed.
  • Stay indoors with windows closed during the midday and afternoon, if you can. Pollen and some mold spore counts are highest at that time.
  • Ask your doctor whether you need to take or increase anti-inflammatory medicine before your allergy season starts.

Exercise, Sports, Work, or Play

  • You should be able to be active without symptoms. See your doctor if you have asthma symptoms when you are active—like when you exercise, do sports, play, or work hard.
  • Ask your doctor about taking medicine before you exercise to prevent symptoms.
  • Warm up for about 6 to 10 minutes before you exercise.
  • Try not to work or play hard outside when the air pollution or pollen levels (if you are allergic to the pollen) are high.

Other Things That Can Make Asthma Worse

  • Flu: Get a flu shot.
  • Sulfites in foods: Do not drink beer or wine or eat shrimp, dried fruit, or processed potatoes if they cause asthma symptoms.
  • Cold air: Cover your nose and mouth with a scarf on cold or windy days.
  • Other medicines: Tell your doctor about all the medicines you may take. Include cold medicines, aspirin, and even eye drops.

Contact These Groups to Learn More About Asthma:

National Asthma Education and Prevention Program
NHLBI Information Center,
P.O. Box 30105, Bethesda, MD 20824-0105
Phone: 301-251-1222
Internet: http://www.nhlbi.nih.gov/index.htm
Allergy and Asthma Network/ Mothers of Asthmatics, Inc.
Phone: 800-878-4403
Internet: http://www.aanma.org
American Academy of Allergy, Asthma, and Immunology
Phone: 800-822-2762
Internet: http://www.aaaai.org
American College of Allergy, Asthma, and Immunology
Phone: 800-842-7777
Internet: http://allergy.mcg.edu
American Lung Association
Phone: 800-586-4872
Internet: http://www.lungusa.org
Asthma and Allergy Foundation of America
Phone: 800-727-8462
Internet: http://www.aafa.org
National Jewish Medical and Research Center (Lung Line®)
Phone: 800-222-5864
Internet: http://www.njc.org
 

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CONSEJOS E INFORMACION PARA CUIDADORES
  • 10 Consejos para cuidadores de familia
  • Preguntas para hacer a su proveedor de asistencia de salud
  • Como comunicarse con un proveedor de Seguro
  • Encontrando un Médico
  • Información de Asientos y Movilidad
  • Consejos de Doctores para cuidadores de Familia
  • ¡Mantenga a los seres queridos conectados y al día!
  • Técnicas de cuidado que usted puede usar
  • Compare Agencias de cuidado de salud en su área
  • Recursos adicionales

 


10 Consejos para cuidadores de familia.
  1. Proveedor del cuidado es un trabajo y un respiro es un derecho ganado. Recompénselo con interrupciones frecuentes de respiro.
  2. Tenga cuidado con los síntomas de depresión, y no demore a obtener ayuda profesional cuando usted lo necesita.
  3. Cuándo las personas ofrezcan ayudarle, acepte la oferta y sugiera cosas específicas que ellos pueden hacer.
  4. Edúquese acerca de la condición de la persona amada y cómo comunicarse efectivamente con los médicos.
  5. Existe una diferencia entre cuidar y hacer. Esté abierto a tecnologías e ideas que promueven la independencia de su ser amado.
  6. Confíe en sus instintos. La mayor parte del tiempo ellos le dirigirán en la dirección correcta.
  7. Los cuidadores a menudo hacen mucho de levantar, empujar, y tirar. Trate bien su espalda.
  8. Preocúpese por sus pérdidas, y entonces permítase soñar nuevos sueños.
  9. Busque apoyo de otros cuidadores. Hay gran fortaleza saber que usted no está solo.
  10. Defienda sus derechos como un cuidador y un ciudadano.
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Preguntas para hacer a su proveedor de asistencia de salud

  • Anote las preguntas para que no las olvide
  • Sea claro con lo que usted quiere decir al médico. Trate de no vagar.
  • Si usted tiene muchas cosas de que hablar, haga una cita para una consulta, así el médico puede permitir suficiente tiempo para reunirse con usted en una tiempo no apurado.
  • Edúquese acerca de la enfermedad o incapacidad de su ser amado. Con toda la información disponible en el Internet ahora es más fácil que nunca antes.
  • Aprenda la rutina en la oficina de su doctor y/o en el hospital, así usted puede hacer el sistema trabajar para usted, no contra usted.
  • Reconozca que no todas las preguntas tienen respuestas—especialmente esas que empiezan con un "por qué”.
  • Separe su ira y el sentido de impotencia en cuanto a no poder ayudar a su ser amado como usted desea de su sentimiento acerca del médico. Recuerde ambos están del mismo lado.
  • Aprecie lo que el médico hace para ayudar y diga gracias de vez en cuando.
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Técnicas de cuidado que usted puede usar

¿Ha deseado usted alguna vez de solo recoger el teléfono y llamar a alguien quién consideraría su situación, ayudarlo a conseguir acceso a los servicios correctos, aconsejarle a usted y su familia para ayudarlo a resolver algunas de sus diferencias, controlar su progreso con un ojo hacia dirigir su energía y habilidades tan efectivamente como sea posible? Si su respuesta es "sí," usted no está solo. La ayuda de un coordinador del cuidado (a menudo llamados: director de cuidado) podrían hacer nuestra vida más fácil y menos solitaria, y ayudarnos a ser cuidadores de familia más capaces. Mientras la mayor parte de nosotros no podemos tener acceso a un coordinador de cuidado, todos nosotros podemos aprender a cómo pensar y actuar como uno, con lo cual cosechando numerosos beneficios para nuestros seres amados y para nosotros mismos.

¿Qué Es Coordinación de Cuidado?
Aunque cada caso sea diferente, el enfoque de coordinación de cuidado implica generalmente:

  • Reunir información de proveedores de salud;
  • Una evaluación de su recipiente de cuidado y el ambiente hogareño;
  • Investigación en servicios públicos y/o privados disponibles para satisfacer las necesidades de su ser amado; y
  • Comunicación Progresiva entre todos para mantenerse al ritmo de la información  y atender los servicios apropiados y efectivos.

Desgraciadamente, una evaluación de sus habilidades y necesidades no es necesariamente una parte básica del proceso, pero debería ser. Un completo análisis de la situación no puede ser ganado sin uno. Un análisis objetivo de su salud, estado emocional, y otros compromisos, etc., son elementos claves a determinar cuánto usted puede y no puede hacer, y qué tipo de apoyo se necesita para asegurar la salud y seguridad de su ser amado.

Llegue a ser Su Propio Coordinador del Cuidado
Aprendiendo y aplicando por lo menos algunas de las técnicas de coordinación de cuidado e ideas que siguen, usted estará en una posición mucho mejor de desarrollar una línea de acción organizada que hará, optimistamente, que usted se sienta más seguro y en  control — una meta de valor para seguir adelante.

Edúquese usted mismo De la naturaleza de la enfermedad o incapacidad con que usted trata. Información segura está disponible en la agencia de salud que trata con la condición de ser amado y los Institutos Nacionales de la Salud. Cuando use el Internet, quédese con sitios médicos conocidos. Comprender lo que le sucede a su recipiente de cuidado le proporcionará con el conocimiento que usted necesita para avanzar. También le hará un mejor abogado al hablar con profesionales de asistencia de salud.

Anote sus observaciones de la situación actual incluyendo:

  • La habilidad de su ser amado de desenvolverse independientemente, físicamente y mentalmente.
  • La disponibilidad de la familia y/o amigos para formar una red de apoyo para compartir el cuidado.
  • El entorno físico: Es accesible o puede ser adaptado en un costo razonable?
  • Sus otras responsabilidades — en el trabajo, en casa, y en la comunidad.
  • Su propia salud y habilidades físicas.
  • Sus recursos financieros, seguro disponible, y la existencia de asistencia de salud o documentos de fin de vida.

Esta evaluación le ayudará a tener un punto de vista práctico de la situación. Le permitirá que usted sepa las preguntas a las que usted necesita respuestas. Puede ser una manera práctica para trazar su trayecto de coordinación de cuidado y recordándole cuánto usted ha ido aprendiendo en el camino.

Tenga una conferencia de familia. Por lo menos todos en la familia más cercana deben ser informados con lo que pasa. Una reunión puede preparar el camino para repartir  responsabilidades y así existan menos malos entendidos en el futuro cuando mucha ayuda puede ser necesitada. Un miembro del clero, un coordinador profesional de cuidado, o incluso un amigo confiado puede servir como un mediador imparcial. Una reunión de familia es una buena manera de permitirles saber que ellos pueden jugar un papel, incluso si ellos se encuentran a miles millas. Le puede ayudar a usted, el cuidador primario de la familia, de aguantar lo más duro del trabajo todo el tiempo.

Mantenga buenos registros de Los números de emergencia, los médicos, las medicinas diarias, dietas especiales, personas de reserva, y otra información pertinente que relaciona el cuidado de su ser amado. Actualice como sea necesario. Este registro será inapreciable si algo le sucede a usted, o si usted necesita hacer un viaje a EMERGENCIAS. Si usted puede mantener un registro computarizado, hará que actualizar todo sea más fácil y aún quizás le permita proporcionar al grupo médico un acceso directo a la información.

Unase a un grupo de apoyo, O encuentre otro cuidador con quien conversar. Además de apoyo emocional, usted probablemente recogerá puntos prácticos también. Los profesionales se contactan unos a otros todo el tiempo para darse emocional apoyo y encontrar respuestas a los problemas o situaciones que ellos encaran. Por qué no los cuidadores de familia?

Planee con avance las decisiones difíciles Eso puede quedarse adelante. Nunca es demasiado temprano para discutir testamentos, directivas anticipadas, y los poderes de abogado, llega un tiempo cuando es demasiado tarde. Es también esencial que usted y su ser amado piensen que hacer si usted llega a ser incapacitado, o, peor, se muere primero. Puede suceder.

Desarrolle un grupo de cuidado Para ayudar durante emergencias, o con el tiempo si su situación es muy difícil. En un mundo ideal habrá muchas personas que quieran ayudar. Más probable usted podrá encontrar una o dos personas para llamar en caso de emergencia o para ayudar con pequeñas tareas. La cosa mas crítica es de estar dispuesto a decir a los otros lo que usted necesita y para aceptar su ayuda.

Establezca un régimen de familia. Cuándo las cosas son difíciles para empezar, mantener una rutina diaria sincera puede ser un estabilizador, especialmente para personas que encuentra los cambios trastornantes y confusos.

Analice algunos de sus deberes más duros como cuidador profesional. Es extraordinariamente difícil de separar su papel de familia de su papel de cuidador, para cerrar sus emociones como en una caja mientras usted se enfoca en tareas y decisiones prácticas. Pero no es imposible ganarse una distancia de vez en cuando. Requiere un enfoque casi resuelto a conseguir el trabajo en mano hecha eficientemente y como efectivamente posible. Toma práctica, pero definitivamente vale el esfuerzo.

© Asociación nacional de Cuidadores de Familia | www.nfcacares.org | Teléfono: 800/896-3650

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Los asientos & Movilidad - Como un cuidador, usted necesita entender mucho las necesidades de cada individuo. Esto es un tiempo muy duro para ellos ya que se les dice que necesitan empezar a vivir su vida diferente de como ellos habían hecho antes. Será muy beneficioso educarlos, con un profesional, o por un grupo de apoyo. Consiguiendo que hagan actividades diferentes con otros en su misma condición, el individuo podrá hacer la transición mucho más fácil. En cuanto al dispositivo, usted querrá cerciorarse que el individuo sea completamente capaz de realizar todas las operaciones del dispositivo de movilidad y que pueda así estar cómodo. Las áreas para atender puede incluir un respaldo ajustable, un sistema de suspensión,  el ajuste del asiento para arriba y abajo, un apoyabrazos y/o el reposapiés, y un apoyo para la región lumbar.

Cómo cuidar de su dispositivo de movilidad?

Las áreas más importantes que usted necesita atender son: baterías Malas, bordes doblados de rueda y cojinetes defectuosos. Si usted nota algo que no parece bien, pero que no molesta mucho, usted todavía debe obtener atenderlo inmediatamente. Esto podría prevenir un accidente severo. De modo que como el dicho va "es preferible ser seguro que arrepentido".
Cuándo se compra una silla de ruedas, usted querrá cerciorarse que todos los ajustes y las modificaciones son hechas correctamente. Esto necesita ser hecho por un profesional y debe tomar solo un par de horas si se hace correctamente. Media vez se toman las medidas apropiadas desde el principio, el trabajo de mantener el dispositivo será substancialmente más fácil.

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Recursos adicionales
Es siempre sabio averiguar lo que su condado y estado tienen que ofrecer en la manera de servicios, incluso si usted piensa que no calificará para ellos. Verifique las páginas azules de su guía para los números, o vea sitios de web. Los condados y estados todos tienen sitios de web. Escriba el nombre de su estado o el condado en los mejores sitios de búsqueda es decir Iowa, o Condado de Montgomery, PA. Navege allí para localizar el Ministerio de Sanidad y Seguridad Social y la oficina específica muy pertinente a sus necesidades tal como la oficina de incapacidades, asuntos de mayores, o salud materia y salud de niño.

Otras buenas fuentes de información incluyen su hospital o clínica locales (el departamento de asistencia social), son áreas de centro para adultos, agencias sociales del servicio basadas en fe, y/o el capítulo local de la agencia de la salud que se enfoca en la condición de su ser amando. Es de ninguna manera cierto que cualquiera de éstos le ofrecerá a cuidador los servicios de apoyo, pero son buenos lugares para verificar, y son buenas fuentes de información acerca de servicios de sostener directamente para su ser amado.

Asociación nacional de Cuidadores de Familia:

10400 Connecticut Avenue, Suite 500
Kensington, MD 20895
800-896-3650
Sitio de Web: http://www.thefamilycaregiver.org
Correo electrónico: info@thefamilycaregiver.org

La Asociación Nacional de Cuidadores de Familia (NFCA) es una organización del nivel local que se creó para educar, sostener, autorizar y recomendar al millón de Americanos que cuidan a sus seres amados que están crónicamente enfermos, viejos o incapacitados. NFCA es la única organización del distrito electoral que alcanza a través de las fronteras de diferentes diagnósticos, relaciones diferentes y las etapas diferentes de la vida para dirigir las necesidades comunes que conciernen a todos los cuidadores de familia. NFCA sirve como una voz pública para cuidadores de familia a la prensa, al Congreso y al enorme público. NFCA ofrece las publicaciones, la información, los servicios de  referencia, apoyo para el cuidador, y apoyo.

Sitios específicos de la web para cuidadores
Hay una gran variedad de sitios de web que ofrecen información y apoyo para cuidadores de familia, además de ésos de organizaciones específicas.

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